Making kids safer, one question at a time.  Welcome to the Car-Seat.Org community!   Motor Vehicle Crashes are the #1 cause of fatal injury for children and adults, age groups 1 to 34.   Selecting a safe car, minivan or SUV, plus correctly using child restraints and seatbelts may be the most important things you can do to protect your family.   Need help installing an infant, convertible or booster seat?   Looking for carseat reviews or compatibility advice? Need help buying the best and safest car seats for your baby, toddler or older kid?   No question is a bad one, so please click here to ask our experts a question and then join our friendly community of moms, dads, caregivers and advocates in the USA and Canada.   Thank you for visiting; buckle-up and drive safely!


 

Sponsored Ads

+ Reply to Thread
Results 1 to 9 of 9
  1. #1
    CPS Technician
    Join Date
    Mar 2009
    Posts
    208

    Seat for infant with severe hydrocephalus

    I am asking this for a friend who had a child in late October who was born with severe hydrocephalus. He is currently in an infant bucket but will need to switch over to a convertible within coming months.

    At 4 months old: his head is 54cm in circumference, and carries about 3 extra pounds of fluid in it currently. His total body weight is 19lbs4oz, and he is 27 inches tall. Also, I believe head slump would be an issue with him as he cannot physically lift his head up so the angle would still need to be 45 degrees.

    Obviously, due to the size of his head and delicate condition mom wants to keep him RF for as long as possible. His 2 year old sister maxed out her truefit RF by weight at about 22 months. Mom drives a 96 Acura Integra.

    I was thinking the best options may possibly be either the Radian XTSL because of the 45lb limit RF or possibly even petitioning the NHTSA to bring over a Swedish seat to RF him to 55lbs (although that option may be cost prohibitive to them as they are struggling financially)

    Will a Radian fit in a 96 Acura? Are there other options for mom to consider aside from the Radian? I know there are special needs seats she may be able to consider. She is in California, would insurance help pay for a special seat for him?

    Thanks so much guys

  2. # ADS
    Sponsored Ads
    Join Date
    April, 2001
    Posts
    Many
     
     

  3. #2
    CPS Technician autumnlily's Avatar
    Join Date
    Mar 2009
    Location
    Oregon
    Posts
    1,357

    Re: Seat for infant with severe hydrocephalus

    Graco MyRide comes to mind.
    Misty, CPST and SK Senior Checker

  4. #3
    CPS Fanatic Shaunam's Avatar
    Join Date
    Sep 2006
    Posts
    1,243

    Re: Seat for infant with severe hydrocephalus

    Start with a regular american convertible. A swedish seat will not be necessary for a long time and he won't fit for a while anyway since they are generally used from 9+ months.

    I wouldn't do an XT simply because he can't use the headwings at this point and the sides aren't deep. Maybe later it will be a good option, especially if they can't afford a swedish seat later, but for now, I'd pick something that just offers good support. It doesn't necessarily need headwings, but nice deep sides you can prop rolled blankets against would be nice. I like the graco my ride for my kiddo who has no head control.

    Insurance may or may not pay. IME, they only pay for actual "special needs" seats...britax traveller, britax hippo, ect.
    Shauna, mom to Adrian (9 yrs, 54" and 83 lbs), in an Evenflo Amp and Charlie (6 yrs, 42" and 35 lbs), in an Evenflo Titan 65.

  5. #4
    CPS Advocate
    Join Date
    Sep 2008
    Location
    Invisible, but right behind you
    Posts
    9,820

    Re: Seat for infant with severe hydrocephalus

    I think the Graco My Ride would be a good choice right now because it will support his head nicely. Depending on his weight/height gain, they could plan on the Radian XTSL when he's bigger.

  6. #5
    CPS Technician autumnlily's Avatar
    Join Date
    Mar 2009
    Location
    Oregon
    Posts
    1,357

    Re: Seat for infant with severe hydrocephalus

    The Graco MyRide rear faces to 40lb and has deep side wings - but open enough for a larger head. It's so nice of you to help your friend search this info out.

    The MyRide sits nice and tall and when it turns FF, it has a nice natural recline.
    Misty, CPST and SK Senior Checker

  7. #6
    CPS Technician
    Join Date
    Mar 2009
    Posts
    208

    Re: Seat for infant with severe hydrocephalus

    I didn't even think of the MyRide!

    Thanks so much for all the replies, you guys were FAST!

  8. #7
    Unregistered
    Guest

    Re: Seat for infant with severe hydrocephalus

    I am the friend Tara was helping...thank you guys SO MUCH. I think we will look into the MyRide.

  9. #8
    Deanne
    Guest

    Re: Seat for infant with severe hydrocephalus

    Do you use an additional neck collar or head support to help with positioning? If so, what have you tried?

  10. #9
    CPST and ketchup snob ketchupqueen's Avatar
    Join Date
    Oct 2008
    Location
    L.A. area
    Posts
    20,418

    Re: Seat for infant with severe hydrocephalus

    Quote Originally Posted by Deanne View Post
    Do you use an additional neck collar or head support to help with positioning? If so, what have you tried?
    This thread is 8 years old so you're unlikely to get a reply from the original posters.

    Collars shouldn't be added unless prescribed by a doctor (preferably one who's familiar with car seat requirements.) Rolled blankets along the side of the head can be added if needed. With hydrocephaly, a wide-open convertible may be needed. In some severe cases a baby with a very large head and no head support might need a car bed for a while. The best thing to do if having issues is see a CPST who's had the additional training in transporting children with medical needs.
    CPST and Mom to Emma, 15, Bridget, 13, Maggie, 11, Katie Sue, 6, Jimmy, born May 2019,
    and Becky, waiting for us as part of our eternal family.
    Our '02 Odyssey, car seats, and seatbelts saved our lives. Now riding in a '13 Odyssey!

Similar Threads

  1. Severe Nautilus Head Slump
    By sanctareparata in forum CAR SEATS - General Child Safety Seat Questions, Help and Advice
    Replies: 10
    Last Post: 05-18-2008, 08:10 PM
  2. severe constipation in a 13 month old
    By MommyofBoogieBear in forum Carseat Chat
    Replies: 39
    Last Post: 02-19-2007, 09:45 PM

Tags for this Thread

Bookmarks

Bookmarks

Posting Permissions

  • You may post new threads
  • You may post replies
  • You may not post attachments
  • You may not edit your posts
  •