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  1. #1
    Registered User
    Join Date
    Feb 2016

    Osteogenesis imperfecta

    My son just turned 18 barely 3 feet tall with osteogenesis imperfecta brittle bones disease and severe scoliosis I am looking for a car seat ge cannot sit up and doesn't have trunk body control tge other car seats I have padded up but his scoliosis is severe it doesn't work anymore because he is in so much pain and the curve in the car seat he needs something that reclines padded more straight than the curve near the back and legs I have been d
    Padding car seats for years now my only option is to put him on pillows and lay him on the seat and buckle him in is there any car seats out there to accommodate my child I don't just want him to stay home and he is vent dependent as well
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    Join Date
    April, 2001

  3. #2
    Admin - Webmaster Admin's Avatar
    Join Date
    Jan 2003

    Re: Osteogenesis imperfecta


    I am sorry to hear about your son and the difficulties you are having.

    This issue really needs personal attention of a local technician with special needs training to evaluate the situation. You may be able to get a referral from a case worker that you currently have, or you can consult these resources to find a technician or instructor with special needs expertise:

    • Click on “Find a Technician/Instructor.”
    • In the CPS Technician Search: FIND A TECH box, scroll down to the Extra Training field.
    • Click on “Special Needs” in the Extra Training field.
    • You can limit your search to a specific state or postal code by first completing those fields in the FIND A TECH box.
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  4. #3
    Senior Community Member Dillipop's Avatar
    Join Date
    Sep 2005

    Re: Osteogenesis imperfecta

    How much does he weigh?

    Ez-on makes a vest that allows a person to lay on the vehicle seat and still be protected. But at 36inches, he may be too small.

    Sent from my iPhone using Tapatalk

    CCO 4/15

  5. #4
    Carseat Crazy rin2809's Avatar
    Join Date
    Feb 2013
    Burnsville, MN

    Re: Osteogenesis imperfecta

    Depending on the weight, the MyRide 65 may be worth looking into. It has a pretty straight back and reclines a bit installed Forward Facing so it may fit your needs.
    Big Boy G: 11/6/2012, 53lb/49", Evenflo Procomfort RightFit HBB, Evenflo Big Kid HBB
    Little Bro C - 12/4/2015, 32lb/38" Graco Nautilus 65 Safety Surround, Graco Atlas 65
    Extra Seats: Graco Nautilus 65, Cosco Apt 50, Evenflo Maestro, Harmony Defender, Graco Turbobooster NBB, Cosco Rise NBB

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