WWYD: RFing older child with Down Syndrome

lukensophie

Senior Community Member
Ok, I have a WWYD for you. This is something I've been contemplating a lot lately. Our youngest child is 5.5 and has Down Syndrome. A bit of background, we brought him home from Bulgaria two years ago at the age of 3.5. At that time, he weighed 16 pounds and was about 30 inches long. He had horrible muscle tone and couldn't even sit unassisted. We brought him home in a Chicco KeyFit. Currently, he weighs about 30 pounds and is approximately 38 inches tall. He's sitting, crawling, pulling to stand, and has much improved tone.

He rides RFing in a Graco Size4Me and could probably fit that way for a very long time. Due to size and low tone, I've kept him RFing. However, he is 5.5. Thoughts on keeping him RFing?
 
ADS

1mommy

New member
Found this in another special need post about a child with fine syndrome. The post is by KetchupQueen


One issue you should be aware of when deciding whether to rear or forward face is that around one in three children with DS has atlantoaxial instability. This can't usually be diagnosed until 4 to 5 years old (by imaging) and if present highly increases the risks of forward facing, and of death in a crash forward facing. It's a tough choice, but that is an important reason we recommend children with DS should rear face several more years, generally, so I wanted to make sure you know the prevalence and risks when deciding.
 

aept

New member
Are you looking forward to FF for certain reasons or is it not really a big deal to you and your family to keep him RF for quite a while longer? I totally understand wanting to FF for my own convenience despite knowing the benefits of staying RF.
In this case I think it makes sense to keep him RF for now, but maybe consider FF him whenever you think his "bone age" is equal to that of a four-year-old. Maybe by 6/6.5? Just guessing based upon your description of where he started and how far he's come along developmentally and how much he has grown in height/weight since he has been home with you. (I'm a pediatric PT so my area of expertise would be in development, not bone age.)
 

lukensophie

Senior Community Member
No, I'm not really in a hurry to move him forward facing. His seat is second row, driver's side, and his school has a separate carpool area for kids with special needs so that the parents can load/unload the children ourselves.The other kids just use the opposite side of the car to climb in and out (although the 6 year old occasionally climbs in under DS4's seat). I guess I was just thinking out loud and contemplating the reality that he could rear-face a few more years (maybe I should have put this as a "chat" discussion instead of in an "advice" forum).

As for bone age, it's so hard to tell when he may be an appropriate bone age to forward face. Severe, long-term malnutrition does such weird things.
 

ketchupqueen

CPST and ketchup snob
Staff member
Low tone is also common with DS and that is also something rf is much better for.

With cases of malnutrition in infancy definitely bone age can be affected and is something to consider in deciding what is safe.
 

jjordan

Moderator
I'd keep him RF for now and reevaluate when it stops working for you or becomes inconvenient. As for bone age, you could have that tested via x-ray if you want to take that into account in making your decision.
 

Car-Seat.Org Facebook Group

Forum statistics

Threads
219,384
Messages
2,201,240
Members
13,364
Latest member
NICPST

You must read your carseat and vehicle owner’s manual and understand any relevant state laws. These are the rules you must follow to restrain your children safely. All opinions at Car-Seat.Org are those of the individual author for informational purposes only, and do not necessarily reflect any policy or position of Carseat Media LLC. Car-Seat.Org makes no representations as to accuracy, completeness, currentness, suitability, or validity of any information on this site and will not be liable for any errors, omissions, or delays in this information or any losses, injuries, or damages arising from its display or use. All information is provided on an as-is basis. If you are unsure about information provided to you, please visit a local certified technician. Before posting or using our website you must read and agree to our TERMS.

Maxi Cosi is a proud sponsor of Car-Seat.Org!Graco is a Proud Sponsor of Car-Seat.Org!Nuna Baby is a Proud Sponsor of Car-Seat.Org!

Please  Support Car-Seat.Org  with your purchases of infant, convertible, combination and boosters seats from our premier sponsors above.
Shop travel systems, strollers and baby gear from Britax, Chicco, Clek, Combi, Evenflo, First Years, Graco, Maxi-Cosi, Nuna, Safety 1st, Diono & more! ©2001-2020 Carseat Media LLC

Top