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cat mommy said:I would not feel comfortable with the bus driver near my daughter's naked butt. I would feel comfortable with either her teacher or a properly trained aide.
Mommy0608 said:Ah, thanks. That makes sense. Might be worth looking into for the future.
I showed this thread to DH and we discussed it. I'll be driving her to and from school every day, and she'll ride the bus in a harness for field trips.
Thank you everyone for your help, I really appreciate it. Your comments helped us look at it from all angles and make a decision. Haven't told DD yet though.
I was also thinking along the lines of the other kids seeing the meds being given. There needs to be some kind of plan in place as to how public dosing can be done in a way that doesn't involve 25 6 year olds watching.
I agree with driving her now.
At her next IEP I would request, with documentation from her neurologist, to have a trained aide on the bus with her so maybe she can ride it in the future! The aide need not single her out, just be an extra trained person nearby should she have a seizure.
Yeah, this might be something to consider for 1st grade next year. I keep hoping she'll just outgrow it, but the longer we go, the less likely she'll outgrow it (she's had it since birth). She has to go 2 years seizure-free in order to try going off meds to see if it's possibly outgrown. Her last seizure was in March, so two years from then puts us almost to the end of 1st grade. Even if she doesn't have another, there will be a period of time after that where she'd still need access to Diastat incase she had seizures off the daily medication.
You can have it added now (see my post way above). You just need an addendum to her IEP. If the IEP team (yourself included) doesn't want to write an addendum, just call another full IEP meeting.
I was also thinking along the lines of the other kids seeing the meds being given. There needs to be some kind of plan in place as to how public dosing can be done in a way that doesn't involve 25 6 year olds watching.
Is it possible to move her during a seizure? Because I am thinking driver pulls over, kids are ushered to the front, aide/teacher takes her to the rear seat and places a blanket over the seat to administer the medicine, while driver blocks the aisle so other kids don't go peeking.
Is it possible to get this drug in injection form? Cause that would just be so much better in terms of administration. Even if it had to go into her butt via IM injection, it would be into the top of her butt, so the aide could just pull down her pants a little. That would be a lot less traumatic--on a bus full of kids--than having to spread her butt cheeks and insert something into her rectum. KWIM?
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