C
Clare
Guest
hi everyone,
Someone passed me onto this site in hopes that you guys could help me.....
I live in Australia and I have a 3 year old who is about 110cm (she is as tall as her 5 year old brother), and is growing out of her SnS meridian very quickly.....she probably has a year max left in it, so we are trying to look into other alternatives now because we dont want to get there and realise we have nothing.
Lauren suffers from a disease called Leukodystrophy, which is a degenerative neurological disorder so she will get worse. This disease has left her with rather bad hypotonia (she can sit for about 5 minutes then flops or needs to lie down) and she often has seizures. She also has a feeding tube in her tummy.
I have tried the SnS maxirider but it does not recline enough for her even on full recline, nor do any of the other convertible boosterseats (e.g. eXceed, senator etc). Basically she needs the recline of a Meridian on the utmost forward facing recline, but the height of a SnS maxirider....
I spoke with her paediatrician who has recommended we look into "special needs carseats" but I dont like the ones that I have seen, and we have the added problem of needing to fit 3 across the back of a 2007 Kluger. the paediatrician said if we were interested in importing he would write a letter stating that Lauren is in need of the carseat, especially since she will always need a harness for riding due to the low muscle tone (he also said he thinks Australia needs to change the standards to allow harnessing till 36kg because he feels its unsafe to have them unharnessed so quickly).
Does anyone know of a good seat that would cater to a child with hypotonia and need for a decent recline, but also not extremely wide (i liked the Traveller Plus until I saw how wide it was) so we can still fit 3 across. Pictures would also be great of it in recline if anyone has any....
**The Leukodystrophy Association has recommended the Medifab Carrot so if anyone has heard of that or had experience it would be great to know a bit more about it, but I would really prefer a seat that looks a little less medical and more "normal" for Lauren**
thanks everyone
Someone passed me onto this site in hopes that you guys could help me.....
I live in Australia and I have a 3 year old who is about 110cm (she is as tall as her 5 year old brother), and is growing out of her SnS meridian very quickly.....she probably has a year max left in it, so we are trying to look into other alternatives now because we dont want to get there and realise we have nothing.
Lauren suffers from a disease called Leukodystrophy, which is a degenerative neurological disorder so she will get worse. This disease has left her with rather bad hypotonia (she can sit for about 5 minutes then flops or needs to lie down) and she often has seizures. She also has a feeding tube in her tummy.
I have tried the SnS maxirider but it does not recline enough for her even on full recline, nor do any of the other convertible boosterseats (e.g. eXceed, senator etc). Basically she needs the recline of a Meridian on the utmost forward facing recline, but the height of a SnS maxirider....
I spoke with her paediatrician who has recommended we look into "special needs carseats" but I dont like the ones that I have seen, and we have the added problem of needing to fit 3 across the back of a 2007 Kluger. the paediatrician said if we were interested in importing he would write a letter stating that Lauren is in need of the carseat, especially since she will always need a harness for riding due to the low muscle tone (he also said he thinks Australia needs to change the standards to allow harnessing till 36kg because he feels its unsafe to have them unharnessed so quickly).
Does anyone know of a good seat that would cater to a child with hypotonia and need for a decent recline, but also not extremely wide (i liked the Traveller Plus until I saw how wide it was) so we can still fit 3 across. Pictures would also be great of it in recline if anyone has any....
**The Leukodystrophy Association has recommended the Medifab Carrot so if anyone has heard of that or had experience it would be great to know a bit more about it, but I would really prefer a seat that looks a little less medical and more "normal" for Lauren**
thanks everyone