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  • thank you so much! If you are able to pass any info on that find out about, please let me know. The website sounds great. I'm seeing the baby's grandma tomorrow as part of the family will be here (Vancouver) for part of the Olympics. I know she will be happy to have the site and some other info I've found. All the best to you and your baby. Take care and hope to connect again soon. Kathy
    Hi Kathy,

    I would definitely be fine with sharing/talking with them if they would like to at some point. I don't know that I have a lot to share yet as we are struggling through this too. However, there is group of parents online that they should definitely join and I have learned a lot from in the last couple weeks. There are people on there from all over the world and I know there are some specialists/hospitals in Canada that have been mentioned a lot. Here is a link to the group:
    http://health.groups.yahoo.com/group/OIparents/

    Let me know if there is anything else I can do!

    Julia
    I can measure about 17.25" or so depending on how I measure. I know others have managed to measure 18", I think it just depends on how you measure.
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